Autism Awarness ​​​Day and Month

Apr 2, 2019Awareness

Get the latest news:

Today is Autism Awareness Day but in my family this is every day. But April as a whole is Autism Awareness Month.

I’ve pretty much known most of my kiddo’s life that he falls on the spectrum but because his genetic disorder took precedence and some of the behaviors and symptoms are similar the docs were reluctant to give him the official autism diagnosis – until 2 months ago. He’s now 15.

From the University of Virginia Children’s Hospital Website:

Autism spectrum disorder (ASD) is a complex set of developmental disorders. It includes a wide range of symptoms that may be mild or can cause severe impairment. ASD can affect your child’s ability to communicate and socialize with others.

My son was non-verbal until he was about 5 – it’s a bit challenging to say whether it’s from the genetic disorder or from the autism. But that wasn’t the only reason that led me to believe this – while he is now verbal, his meltdowns became turtle mode – where he will hide into his jacket or sweater.

The challenges we face are primarily in the social aspect and his resistance to go to new places and try new things. Whenever we have plans, it’s always best to tell him days in advance and remind him repeatedly so he can adjust and well be prepared. This has been helpful and reduced the amount of shutdowns and meltdowns he would experience.

But I also believe he has to have his boundaries pushed a little, and I am well aware of what he can or cannot handle and we communicate – a lot – about doing and trying new things.

Like going on road trips and he knows he will be missing out on game time and watching YouTube – and he’s resisting only to then turn around at tehe end of the day and say it was the best day ever.

But it also shows up in expectations and his thinking process – think Christmas and birthday – where he has a list a mile long – and while we made sure he would get *some* things on the list – there were years that wasn’t always possible. Cue the meltdown. But then he turns around at the end of the day and tells us “it was the best _____ ever”.

And these are just a small part of challenges that we’ve learned to maneuver over the years. Anytime his schedule is changed without warning – his processing becomes very clear.

I think sometimes what’s more challenging is his processing of emotions such as anger, disappointment, frustration. He retreats into himself, and isn’t forthcoming about how he feels – and only occasionally is he open to being asked questions around it to support him in processing it all.

Now two people with Autism are alike – each and every person is different in some small way – even when the symptoms are the same.

One of my kid’s peers is on the spectrum as well – and when they first met my boy was in awe of him – how his buddy maneuvered the world around him – it’s been a beautiful friendship.

And now I am trying to find my own resources in areas my son will need support in when he’s an adult. But the point really is – whatever you think autism is or looks like – you may be wrong about it.

Because at the end of the day, people with autism are people. People with feelings and emotions – who tend to process them differently than we expect. People who may not always understand or get some of the social cues – but just maybe you could have a conversation about it – and then again maybe not.

In a world where we are taught to be all the same be happy that you’re not.

0 Comments

Leave a Reply

About me

Goal Mindset Mentor helping creatives, multi-passionates and rebels transform their mindset, strategies, and habits so they can go from confusion to clarity and fill their lives with love, joy, and productivity!   

Subscribe

Recent Posts

Why Habits Should Be Formed One at a Time

Why Habits Should Be Formed One at a Time

One of the best pieces of advice you will receive about forming new habits is that you should only form one at a time. When you attempt to change too much at once, it almost always leads to failure. This can overwhelm you, frustrate you, and give you too much to...

Rebel Incubator Questions Answered!

Rebel Incubator Questions Answered!

Rebel Incubator Questions Answered because you could be wondering about this! Here’s the thing, this isn’t about adding anything extra into your schedule but getting a bit more strategic about your time and doing the things that need to get done. Anytime I have a...

You can do so much with the right plan

You can do so much with the right plan

You can do so much with the right plan for you! There are 24 hours in a day and so much can be done during that time, all you need to do is make it a priority and set time aside to focus and get it done. Riding the wave of inspiration allow you to bring your idea from...

Categories

» Freebies

» Programs

» Work with me

Petra Monaco Goal Success Coach
myobvi

Pin It on Pinterest

Share This