April is National Donate Life Month

April is National Donate Life Month

My family has been personally impacted by Organ Donation and without it, my youngest son would probably not have survived his genetic disorder. When he was born we didn’t know he had Urea Cycle Disorder – that is something he was diagnosed with at the age...
Autism Awarness ​​​Day and Month

Autism Awarness ​​​Day and Month

Today is Autism Awareness Day but in my family this is every day. But April as a whole is Autism Awareness Month. I’ve pretty much known most of my kiddo’s life that he falls on the spectrum but because his genetic disorder took precedence and some of the...
Developmental Disability Awareness

Developmental Disability Awareness

Within the United States, one in six, or about 15%, of children aged three through 17 have one or more developmental disabilities. My son is part of this statistic and has developmental disability. And aside from medically related challenges, ensuring that my son...
Rare Disease Day is February 28

Rare Disease Day is February 28

There isn’t a parent I met that said: I want a child with a rare disease. And yet the reality is that people are born and/or develop a rare disease. I have given birth to three children incredibly healthy and it never dawned on me that my youngest would be born...
A camp for kids with extra needs

A camp for kids with extra needs

Being a parent can and often is challenging enough in my experiences and when becoming and being a parent of a child with extra needs it becomes a completely different beast. Especially if those extra needs are related to anything medical and could mean the difference...

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